Sunday, February 1, 2015
Still managing, not having enough fun, but shouldn't complain. It so rarely does any good.
The good news is that I've now been 13 months since my last seizure, mid December of 2013.
That one occurred just as I turned off the power to Pat's Prius at her house, dropping her off after our dinner. We'd already dropped off Dave at Aegis. For whatever reason, I thought I'd forego my scheduled doobie before dinner with our old friends. Big mistake. Without the cannabis, tapering the phenytoin left me too under dose. With the seizure, Doc Butowski agreed to change meds, and I began my Lamictal prescription. It's been over a year and I'm getting tired of these side effects. There was a significant relief from depression when I stopped the phenytoin. The Lamictal, being also prescribed for bipolar disorder in addition to being an anti-convulsant, has increased my emotional sensitivity so much that I cry every day, only when I see something very positive, and I feel their perspective and happiness for them, and I tear up. No bawling, but involuntary crying. Weird and I want it to stop. Doc Butowski isn't as knowledgeable as psychiatrists on the various medications involved so he's referring me to a psychiatrist at UCSF. The hope is that person will be able to start me on medications with minimum side effects and complete seizure control.
Cannabis daily is still my medicine of choice, but since having a 4 day cold several weeks ago, my cough hasn't cleared up as much as I expect it to, and the smoking exacerbates it.
218 golf rounds posted last year is a personal record that will never be repeated, unless the medication gets magical. My fatigue feels like more now than it did a year ago, but I know it's always been there and may have been worse than I remember. This blog is more a diary for me, and since so little changes, posting here only randomly pretty much covers everything.
Oh yeah, I had my semi annual MRi last week and there remains nothing new going on in my brain. That's good news. No tumor growth.
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